Wednesday, August 19, 2015

Isaac goes FAST!

A couple of weeks ago a big truck pulled up in front of our house.


Isaac wondering why we called him to see the delivery truck...
Challenged Athlete's Foundation gave us a grant to get a sports chair for basketball.  While we've greatly appreciated the loaner chair provided through the basketball league, it didn't really fit him well and provided its own set of challenges.  How wonderful to have a chair made just for him!



 The delivery driver was super excited too, and even stuck around and watched us get it put together. 


During the summer - the off season for the Cincinnati Dragons - one is never sure how many will show up to work with the coaches.  It so happened that the first time Isaac got to take his new chair to practice that he was the only kid to show up that day!  The coaches were able to make the adjustments needed to his chair and then give him some tutoring on how to get the most from it. 

Here he is at practice a few days ago being taught to GO FAST!


We are so thankful for these opportunities for our boy!


Monday, August 17, 2015

The Whole-Brain Child Workbook


This book IS actually a workbook, complete with room to write one's responses after thinking them through. It refers numerous times to the book “The Whole Brained Child” which makes perfect sense, but which I was unaware of when I requested to review the workbook. Still, there is much to be gained in using the workbook as a standalone. Also, when referring to significant quotes from the main book, it does replicate them within the workbook to bring us up to speed.

The workbook begins with a description of left brain (facts) and right brain (emotions) and the goal of helping your child to use BOTH sides of their brain – their whole brain – to process their thoughts and responses. The first step towards this goal is for us, the parent to evaluate how WE respond to the child. Then we are shown how to connect with our right brain and redirect with our left brain.

Numerous “big feeling” situations are suggested and we're invited to look at various options to help our child through them. We're also invited to look at how effective our typical response is. Whole brain strategies are suggested along with discussions and some hands-on projects to help your child understand the concept of the “upstairs” (rational) and “downstairs” (reactive) brain functions.

We're called to be aware of explicit memories (conscious recollection of a past event) and implicit memories (expectations based on past happenings) in order to help our child overcome problematic auto responses. Ways are suggested to help a child talk through these memories and there are even several ideas for games one can create to work through these feelings.

We're called to look at the significant people in our child's life and the effect they have on them. Are there any actions we should take based upon these reflections?
 
One of the final thoughts is to look at our family “fun factor.” Often just taking ourselves less seriously helps where the child is concerned!

This is a book where you will want to pick and choose activities. Some of the deep breathing and imagery were a bit much for my particular tastes, but there are lots of ideas to be found here and I think you'll find many of them helpful. From my viewpoint of parenting children from “hard places” I plan to implement several of their ideas.


Sunday, August 16, 2015

The Gallaudet Children's Dictionary of American Sign Language


As the mother to children whose speech is affected by CP, I'm always interested in new books on signing since my children use both sign and verbal utterances to communicate. The book begins with a basic why and how to of ASL and quickly moves into fingerspelling. It explains nicely the use of facial expressions. We then move into the dictionary part, and oh what a treat this is! As I work with my girls it is often a challenge to quickly find the word I want to teach them, and here they are in alphabetical order! 

The illustrations of each word is clear, colorful, and eyecatching while the illustration of the sign is done in an almost shadow effect in black and white. I love it! 

There are over 350 pages and most common words that *I* was looking for are included. The book's description says there is a DVD that goes along with this book though it wasn't included in my digital version for the book review. I likely will purchase a paper copy of this one to keep in my reference library!

AND... while we are on the subject.  An online friend sent me the link to something FABULOUS and FREE!  If you are looking for sign language help, many, many words and sentences for common needs are found in this video by an ASL interpreter.

http://newdaycreations.com/foster/signlanguage/index.html 





Saturday, August 15, 2015

Baseball!!!!!


Today our youngest four kids tried their hand at BASEBALL!!!  The  Joe Nuxhall Miracle League gives children with special needs the opportunity to feel "normal" for a change.  It seems that our children's lives have been full of the things that they CANNOT do, so today was just so awesome!
 
 See Jen's smile?  It was there the entire time.  As you may remember she was pretty much invisible in her orphanage, not allowed to participate in most of the activities because of her mobility issues.  She was sooooooo excited to play.  And let's just say she charmed the crowd.  They were cheering her and her BIG SMILE on to the home plate where she stopped and bowed to them.  LOL! At one point the announcer called her "Miss Personality" and referred to her as his favorite. 


Can you imagine?  Just two years ago she was special to no one, and today a group of parents WHO GET IT were there cheering her on.  It was such a special time for her!

Each child was paired with a "Buddy" who gave them as much (or as little) help as they needed.  No surprise that Isaac needed very little help.  Also no surprise that he could hit that ball HARD!  And he has a new nickname - WHEELS.  As he zoomed into home plate the announcer jokingly said, "Wheels!  You are going to get a speeding ticket!"

Pat and Abigail in the outfield.

In the dugout.

In the dugout.
You know, we all have our challenges.  I could give you a list of things that this fifty-some year old body is struggling with these days.  But most of my needs aren't visible.  People don't stare and ask questions when I walk by.  But my kids with visible needs -- they have spent their lives being stared at and feeling different when all they want is to just live their lives and fit in like everyone else.  Today they had that chance.  It was totally worth getting up at 7AM on a Saturday to make it happen.  Looking forward to spending the next several Saturday mornings with this league.

With their "Buddies."