Wednesday, May 17, 2017

Sonnet's summer plans

Do you remember Sonnet from last summer?  The tiny girl who needed a harness to sit in her stroller?


I can hardly comprehend that this same child is now learning to ride a bike!  Look at this!


We are so encouraged by the rapid improvements she has shown since being put on the creatine supplements and feel we are really on the right track towards restoring her health.  I wish I could say her plans for the summer are to ride her bike and do all of the other things that children love to do in the summer time.  But she does still have one giant hurdle to jump. 

Sonnet has severe scoliosis.  As in it has to be corrected or we risk crushing her heart and lungs. She and I have flight reservations in mid June for a consultation in Philadelphia.  Why so far?  Locally all they can offer her is a spinal fusion.  It is a very radical surgery and one that we really don't want for a seven-year-old child.  But she is a good candidate for a spinal tethering surgery that is only done in a dozen or so places in the country.  So, off we go!  We'd appreciate your prayers for wisdom for us and the doctors on how to best treat this health issue.